It turned out I had been getting one thing wrong for two years. Once I understood it, everything changed, and I finally got my evenings back.
There is a kind of tired that nobody warns you about.
It is the tired of never being able to leave the room. My mom is 82, and she moved in with us a couple of years ago when it stopped being safe for her to live alone. Somewhere in those two years, I stopped being able to do the smallest things by myself. I could not cook a meal without her right behind me. I could not answer an email. I could not drink a cup of coffee before it went cold. The moment I stepped out of her sight, something in her would start to panic, and she would come looking, asking me the same question she had already asked a minute before.
And it was not only her. That is the part I do not think people understand unless they are living it. I still had a job. I still had kids who needed lunches made and homework checked. Some afternoons I would be trying to finish work at my own kitchen table, with a child's lunchbox on one side and my mom needing me on the other, and I would feel myself being pulled into pieces. There was not enough of me to go around, and everyone needed the piece I did not have left.
The worst part was not even the tiredness. It was the guilt. The guilt of standing in my own kitchen wanting, just for half an hour, to not be needed by anybody. And then hating myself for wanting it.
And I want to be clear about something. It was not for lack of trying.
I had tried everything people suggest. I have a shelf in my hall closet that I have come to think of as the graveyard. Every single thing I bought to help her, and gave up on, ended up there.
The weighted blanket that was supposed to calm her. It was too heavy and too hot, and she got tangled in it trying to stand, which frightened us both. The little fidget gadgets. The pill bottles from the doctor that did calm her down, but took her personality with them, so I found myself looking at a quiet stranger instead of my mom. Every single thing on that shelf either did not work, or worked but cost more than it gave back. Hundreds of dollars of proof that I was failing her.
So when the real solutions ran out, I started doing things I am not proud of.
The fear had changed by then. It was not just that she was restless and needed me. It was that she had started trying to leave. One night I came downstairs and found the front door standing open. She was still there, sitting calmly in the dark, but she had gotten it open on her own, and if I had not woken up she could have walked out into the cold in her nightgown.
Someone in a support group told me that to a confused mind, a patch of solid black on the floor can look like a hole, and it might make her stop and turn back before she reached the door. I was desperate enough to try anything, so I laid a black mat down in the hallway.
It did not work. She walked right over it. That is who I had become by then. Someone laying traps for her own mother in the hallway, and praying they would work.
So I did the next thing. The thing I never in my life thought I would do.
I put a lock up high on the door, where she could not reach it. I stood back and looked at it screwed onto the door, and I felt sick. I had just locked my own mother inside the house. Like a prisoner.
And I wrote the answers to her questions on a whiteboard in the kitchen. What day it was. That she was home. That she was safe. That I would be back at five. Because she asked me the same things a hundred times a day, and there came a point where I could not bear to hear my own voice giving the same gentle answers one more time.
If you have done things like this, I need you to hear something. You are not a bad daughter. You are not a bad son. You are a person who has run out of road and is doing the only things left. I know, because I did all of it.
And the whole time, I was fighting the wrong thing. I just did not know it yet.
I found that out one afternoon at one of Mom's check-ups, when I finally broke down in front of her nurse. This is a woman who has worked with dementia patients for over twenty years, and she has seen every version of me a hundred times. I told her about the lock, and the black mat, and the graveyard in the closet. I expected her to tell me about a better lock.
She did not. She said something quietly that undid me a little.
She said, "Karen, your mom is not trying to escape. She is trying to feel safe."
Then she explained it in a way no doctor ever had. She said that when the mind starts to slip, a person can lose track of where their own body is. The world stops feeling solid underneath them. It is a bit like the ground is not quite there anymore. That feeling sets off a deep, wordless panic, and the body tries to fix it the only ways it knows how. By pacing. By wandering. By getting up and trying to go somewhere, anywhere that might feel safe again.
My mom was not trying to get away from me. She was reaching for a feeling of safety that her own body had lost.
I had spent two years locking doors. I had never once helped the feeling underneath the wandering. No wonder nothing on that closet shelf had worked. Every single thing I tried had been aimed at the symptom. Not one of them had touched the cause.
So I asked her the only question that mattered. If the problem is that Mom's body has lost its sense of safety, how do I give it back to her, when I cannot sit and hold her every second of the day?
That is when she told me about the weighted hugging sloth.
She said the answer was not another gadget to keep the hands busy, and it was not a stronger lock. It was to give my mother's body a steady, gentle sense of being held. The same physical reassurance a snug wrap gives a frightened baby, or that a hand on your shoulder gives you when you are scared. A calm, even weight that quietly tells the body, over and over, without a single word, you are here, you are safe, you are held.
The one she pointed me to is a soft weighted sloth, made for older adults, that lays over the shoulders or across the lap. And I want to tell you honestly what happened the first time I draped it over Mom's shoulders in her chair.
She went quiet. Not the dimmed, faraway quiet the medication used to give her. A settled quiet. Her shoulders came down from up around her ears. Her hands, which never stopped moving, went still in her lap. She reached up and stroked its arm, and she smiled, and she told me it was lovely. And then she just stayed there. Calm, and content, and safe in her chair.
Here is what made it different from everything on that closet shelf. The weight is gentle and spread out, only about two pounds, so it does not press on her fragile joints or trap heat the way the blanket did. It sits on her shoulders and stays put, so there is nothing to get tangled in and nothing to trip over. And it does not look like a piece of hospital equipment, and it does not look like a child's toy. It looks like a companion. She thinks of it as hers.
But the thing that gave me my life back is this. It keeps working after I leave the room.
Everything else I had ever tried needed me. I had to sit and run it, hold her hand, point at the board, watch the door. This does not. I lay it over her shoulders, and that feeling of being held stays with her while I walk into the kitchen and actually cook a meal. While I finish my work. While I sit down for ten minutes and remember what it feels like to be a person and not just a pair of hands.
And here is the part I did not expect. Since she has had it, the trying-to-leave has quieted right down. I honestly cannot tell you the last time I found her at the door. She does not seem to be trying to escape anymore, because the thing she was reaching for, that feeling of being safe, she has it now. It is sitting right there in her chair with her. The lock is still on the door. But most days I forget it is even there.
For the first time in two years, I get my evenings back. And I get them without the guilt, because she is not alone and frightened while I have them. She is wrapped up, calm, and held.
I do need to be honest with you about something, though.
The weighted hugging sloth is not a cure. Nothing is a cure. My mom still has hard days. She still forgets. The lock is still on the door, and I imagine it always will be. This did not fix her dementia, and I would never tell you it could.
But the panic that used to run underneath everything, the thing that made her pace and pick and try to leave, and made both of us cry by five o'clock, that is mostly gone now. And when the panic goes quiet, so much else goes quiet with it.
The nurse told me something that afternoon that I will never forget. She said, "You cannot stop the disease. But you can help her feel safe inside it. And when she feels safe, you get to breathe again too."
That is exactly what happened. My mother feels safe. And I got my life back one piece at a time, starting with my evenings.
If you are where I was, locking doors and laying traps and standing in the hallway at night with your heart in your throat, I want you to know there is a gentler way through this. It is not about fighting harder to keep them in. It is about helping them feel safe enough that they stop wanting to leave.
That is the whole thing. That is what finally worked for us.
If you want to start where I started, this is the weighted hugging sloth the nurse pointed me to.
Check availability →This article shares one caregiver's own experience along with general comfort ideas from care professionals. It is not medical advice, and it is not meant to diagnose, treat, cure, or prevent any condition. It is not a wandering-prevention or safety device, and it should never be used in place of proper supervision. Always talk to your parent's doctor or care team about their needs.